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September 25, 2018

Amyloidosis Support Group To Meet July 16


OSWEGO – The Amyloidosis Support Group – Upstate NY, will meet on July 16, from 8:30 a.m. – 1:30 p.m.

The group will meet in Rochester General Hospital’s (1425 Portland Avenue) Weiner Conference Room on the ground floor.

The meeting is open to those living in the Upstate NY area: Oswego, Rochester, Albany, Syracuse, Buffalo and Utica.

The guest speaker, via Skype, will be Dr. John Berk from Boston University Amyloidosis Center.

Patients, caregivers, families and interested medical personnel are welcome.

A complimentary light breakfast and lunch will be provided.

RSVP appreciated.

Amyloidosis is a life threatening rare disease often misdiagnosed and under diagnosed.

Contact MaryAnn Kraft, Upstate NY co-facilitator, at 585-334-7501, or
Muriel Finkel: toll free at  866-404-7539.

“Raising awareness is important to both the public and medical communities,” Kraft told Oswego County today. “Don’t Take Your Organs to Heaven, Heaven Knows We Need Them Here.”

For more information, visit
www.amyloidosissupport.com or www.rarediseases.org

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