A benefit concert will be held on Friday, July 17, at 7 pm to raise funds for a Central New York family whose infant is battling a rare disorder called Tuberous Sclerosis. Admission is free, but donations are welcomed to help defray medical costs for Jude Langstaff, who was diagnosed at 6 weeks of age.
The concert takes place at BelieversÃ¢â‚¬â„¢ Chapel of Fulton, 614 S. Fourth St., Fulton (Route 481 across from McDonaldÃ¢â‚¬â„¢s). It features music by Unlimited & Friends, a local Christian band. The acoustic duo Thomas Anonymous also will be performing. Admission is free, and doors open at 6 pm.
Tuberous Sclerosis (or TSC) is a rare disorder that causes tumors to form in many different organs, mainly in the brain, eyes, heart, kidney, skin, and lungs. It affects 1 in 6,000 people in the United States and at least two children born each day have Tuberous Sclerosis.
Jude, the son of Jon and Bridgett Langstaff, and baby brother of 2-year-old Lundy Langstaff of Baldwinsville, requires extensive interventions at Massachusetts General Hospital in Boston, one of the top Tuberous Sclerosis clinics in the country.
Ã¢â‚¬Å“While admission is free, we will take a love offering during the concert, and we will have donation canisters at the entrance to the church sanctuary,Ã¢â‚¬Â said Chuck Copps, lead singer for Unlimited and friend of the Langstaff family. Ã¢â‚¬Å“We encourage people to be generous, as all proceeds will go towards helping little Jude and his family deal with this lifelong disease.Ã¢â‚¬Â
To learn more about Jude and the impacts of TSC, go to a website set up by the Jude Langstaff Medical Fund, www.HelpJude.org. More information about the concert is available by contacting Mr. Copps at 315-806-3331.