Amyotrophic lateral sclerosis (ALS), often known as Lou Gehrig’s Disease, is a neurodegenerative disease that affects nerve cells in the brain and spinal cord. People with ALS lose the ability to control muscle movement, which leads to total paralysis and death, usually within two to five years following diagnosis.
There is no cure and only one drug for treatment which modestly extends survival. Every 90 minutes someone is diagnosed with ALS, and every 90 minutes someone loses their battle to this debilitating disease.
For Darby Leaf, this battle was personal. Leaf’s grandmother, Linda Hathaway, lost her fight with ALS this past summer.
Leaf and her varsity soccer teammates at Pulaski High School joined together in support of the ALS Association which leads the fight to treat and cure the disease through research and advocacy.
The association held a Walk to Defeat ALS event on September 21 at the Inner Harbor Park in Syracuse.
The association’s mission, to lead the fight to treat and cure ALS through global research and nationwide advocacy, also seeks to empower those diagnosed with the disease and their families by providing them with compassionate care and support.
The Walk to Defeat ALS brought the Varsity Soccer players together in support to raise money for a cure.
The students wore their soccer uniforms during the walk to show their solidarity with their teammate.
The team is coached by Arthur Babcock. The local walk raised more than $153,000.