Concert To Benefit CNY Family Battling Tuberous Sclerosis

July 7, 2009 Contributor
<br />Jude Langstaff is shown here at 3 months of age, undergoing a 24-hour video EEG at Massachusetts General Hospital to assess his seizures. Tuberous Sclerosis (TSC) is a rare disorder that causes tumors to form in many different organs, mainly in the brain, eyes, heart, kidney, skin, and lungs areas of the body. Currently there is no cure, and frequent trips to Boston are needed to manage Jude’s disease.
Jude Langstaff is shown here at 3 months of age, undergoing a 24-hour video EEG at Massachusetts General Hospital to assess his seizures. Tuberous Sclerosis (TSC) is a rare disorder that causes tumors to form in many different organs, mainly in the brain, eyes, heart, kidney, skin, and lungs areas of the body. Currently there is no cure, and frequent trips to Boston are needed to manage Jude’s disease.

A benefit concert will be held on Friday, July 17, at 7 pm to raise funds for a Central New York family whose infant is battling a rare disorder called Tuberous Sclerosis. Admission is free, but donations are welcomed to help defray medical costs for Jude Langstaff, who was diagnosed at 6 weeks of age.

The concert takes place at Believers’ Chapel of Fulton, 614 S. Fourth St., Fulton (Route 481 across from McDonald’s). It features music by Unlimited & Friends, a local Christian band. The acoustic duo Thomas Anonymous also will be performing. Admission is free, and doors open at 6 pm.

Tuberous Sclerosis (or TSC) is a rare disorder that causes tumors to form in many different organs, mainly in the brain, eyes, heart, kidney, skin, and lungs. It affects 1 in 6,000 people in the United States and at least two children born each day have Tuberous Sclerosis.

Jude, the son of Jon and Bridgett Langstaff, and baby brother of 2-year-old Lundy Langstaff of Baldwinsville, requires extensive interventions at Massachusetts General Hospital in Boston, one of the top Tuberous Sclerosis clinics in the country.

“While admission is free, we will take a love offering during the concert, and we will have donation canisters at the entrance to the church sanctuary,” said Chuck Copps, lead singer for Unlimited and friend of the Langstaff family. “We encourage people to be generous, as all proceeds will go towards helping little Jude and his family deal with this lifelong disease.”

To learn more about Jude and the impacts of TSC, go to a website set up by the Jude Langstaff Medical Fund, www.HelpJude.org. More information about the concert is available by contacting Mr. Copps at 315-806-3331.

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